* January 23rd 2015 * Sabrina is being moved to the Neuroscience Trauma Unit today, but first she is undergoing a modified barium swallow study done under video imaging, She has had a breathing tube in her throat for so long and they need to see how she handles swallowing liquid's, Sabrina has been wanting a drink of water so bad she dreams about it,
Sabrina is able to swallow honey thick consistency without aspirating, But the test showed it will take time for her to drink water, There is high concern that she will aspirate given fatigue with any consistency. Therefor speech therapy will work with her on this and other areas of concern, Sabrina is disheartened by the news of this but is very happy to be out of the P.I.C.U. and into her own private room in the N.T.U.,
* January 24th 2015 * Sabrina has lot's of visitors today, Teams of specialist are assessing her, planning and scheduling her daily activities for her rehabilitation, Sabrina also takes her very first specialized wheel chair ride to the O.T.( Occupational therapy) and P.T. (Physical therapy) Gym, They show her around and discuss ways to help her get stronger. She was wheeled to a window looking outside the N.T.U. briefly, She is sore and exhausted after all her activities and appointments.
* January 25th 2015 * Sabrina tries to rest up today, It is her brothers Birthday and she watches a couple movies with her family
* January 26th 2015 * Sabrina tried using a commode chair for the first time, Her mom changed her ostomy wafer and pouch, She also went to the Gym for P.T. and was helped to a bench where she sat up for a while, She played spot it! (picture card game) in O.T. briefly. Does all her task's
* January 27th 2015 * Sabrina stood up today in P.T. for the first time with very little help for about 10 seconds, A great accomplishment, She played Uno(card game) for O.T. and did all of her scheduled task's,
* January 28th 2014 * Sabrina does all her task's, She stands up two different times today in P.T. for 10 seconds then 15 seconds, She hit a big plastic ball while gently lobbed at her with a cane several times for O.T. She was able to be wheeled out of the unit today and go see and look out over the sky bridge,( a bridge with glass on both sides overlooking S.L.C. going over a street connecting an outpatient hospital with P.C.H.) She loved it, It was wonderful for her to finally get to see a view other than a parking lot outside her room window.
* January 29th 2015 * Sabrina does all her task's, Something amazing happens today in P.T. she walked 5-6 feet with a walker and very little help just support in case her legs gave out, She then did some bean bag throwing exercises in O.T.
* January 30th 2015 * Sabrina's new trach arrives, It's smaller and flexible, She had her trach changed out, She was upset and terrified of this procedure, But again she exhibited so much courage and bravery getting through it, She also walked again about 10 or more feet in P.T. (Amazing) She played spot it! in O.T.
* January 31st 2015 * Sabrina isn't feeling very good today, She is nauseous and tired, doesnt feel like doing anything, She sits on a bench brought into her room for P.T.
* February 1st 2015 * Sabrina's parent along with the nurse and respiratory therapist(R.T.) wheeled Sabrina down the hall to use real water for the first time in the Hospital, covered Sabrina's body and trach site with a water proof gown, Her mother then washed her hair while her dad made sure the trach site stayed covered, They went back to Sabrina's room and her mother brushed her hair and did other cares as well, She rested and watched some TV with mom,dad and brother.
* February 2nd 2015 * Sabrina does all her task's, She tried a small regular wheel chair today with a little coaxing and liked it, She was able to push herself a little ways before tiring and she also walked another 10-15 feet for P.T. and played Uno for O.T. Then went to the skywalk and looked out over the valley, She was exhausted afterwords, She has gotten a bladder infection though now because they are using a catheter to empty her bladder out because they think she's not doing it herself when she goes, The portable abdominal ultrasound machine they were using to measure the volume in her bladder, actually needed to be re-calibrated and was incorrect,
* February 3rd 2015* Sabrina is a tired and sore today, Does all her task's, She walked about 15 feet again in P.T. and played and put a puzzle together for O.T.
* February 4th 2015 * Sabrina is feeling very tired and sore today, She does all her task's, She laid down flat on her right side and walked about 5 feet for P.T. played a game for O.T. Later in the day Sabrina's oxygenation saturation dropped abruptly while her father was watching the monitor, He notified the nurse who called R.T. then boosted her oxygen setting, R.T. listened to Sabrina's lungs and found that her right lung sounded abnormal, they brought a portable x-ray machine to her room and saw that air was escaping from her lungs into the chest wall cavity (pneumothorax) She was moved to the P.I.C.U. for a chest tube (pigtail) to be put in, This was so terrifying for Sabrina this little Angel, She had been working so hard and making progress little by little and now this, They put a pigtail in her right chest then hooked it to a chest drainage system once again, She was then taken back to her room in N.T.U.
* February 5th 2015 * Sabrina was taken down to x-ray it showed that her right lung had partially collapsed and had a pneumothorax with septations, They made a decision to move Sabrina back to the P.I.C.U. It was heartbreaking for Sabrina and family. (Continue to next page)
Sabrina is able to swallow honey thick consistency without aspirating, But the test showed it will take time for her to drink water, There is high concern that she will aspirate given fatigue with any consistency. Therefor speech therapy will work with her on this and other areas of concern, Sabrina is disheartened by the news of this but is very happy to be out of the P.I.C.U. and into her own private room in the N.T.U.,
* January 24th 2015 * Sabrina has lot's of visitors today, Teams of specialist are assessing her, planning and scheduling her daily activities for her rehabilitation, Sabrina also takes her very first specialized wheel chair ride to the O.T.( Occupational therapy) and P.T. (Physical therapy) Gym, They show her around and discuss ways to help her get stronger. She was wheeled to a window looking outside the N.T.U. briefly, She is sore and exhausted after all her activities and appointments.
* January 25th 2015 * Sabrina tries to rest up today, It is her brothers Birthday and she watches a couple movies with her family
* January 26th 2015 * Sabrina tried using a commode chair for the first time, Her mom changed her ostomy wafer and pouch, She also went to the Gym for P.T. and was helped to a bench where she sat up for a while, She played spot it! (picture card game) in O.T. briefly. Does all her task's
* January 27th 2015 * Sabrina stood up today in P.T. for the first time with very little help for about 10 seconds, A great accomplishment, She played Uno(card game) for O.T. and did all of her scheduled task's,
* January 28th 2014 * Sabrina does all her task's, She stands up two different times today in P.T. for 10 seconds then 15 seconds, She hit a big plastic ball while gently lobbed at her with a cane several times for O.T. She was able to be wheeled out of the unit today and go see and look out over the sky bridge,( a bridge with glass on both sides overlooking S.L.C. going over a street connecting an outpatient hospital with P.C.H.) She loved it, It was wonderful for her to finally get to see a view other than a parking lot outside her room window.
* January 29th 2015 * Sabrina does all her task's, Something amazing happens today in P.T. she walked 5-6 feet with a walker and very little help just support in case her legs gave out, She then did some bean bag throwing exercises in O.T.
* January 30th 2015 * Sabrina's new trach arrives, It's smaller and flexible, She had her trach changed out, She was upset and terrified of this procedure, But again she exhibited so much courage and bravery getting through it, She also walked again about 10 or more feet in P.T. (Amazing) She played spot it! in O.T.
* January 31st 2015 * Sabrina isn't feeling very good today, She is nauseous and tired, doesnt feel like doing anything, She sits on a bench brought into her room for P.T.
* February 1st 2015 * Sabrina's parent along with the nurse and respiratory therapist(R.T.) wheeled Sabrina down the hall to use real water for the first time in the Hospital, covered Sabrina's body and trach site with a water proof gown, Her mother then washed her hair while her dad made sure the trach site stayed covered, They went back to Sabrina's room and her mother brushed her hair and did other cares as well, She rested and watched some TV with mom,dad and brother.
* February 2nd 2015 * Sabrina does all her task's, She tried a small regular wheel chair today with a little coaxing and liked it, She was able to push herself a little ways before tiring and she also walked another 10-15 feet for P.T. and played Uno for O.T. Then went to the skywalk and looked out over the valley, She was exhausted afterwords, She has gotten a bladder infection though now because they are using a catheter to empty her bladder out because they think she's not doing it herself when she goes, The portable abdominal ultrasound machine they were using to measure the volume in her bladder, actually needed to be re-calibrated and was incorrect,
* February 3rd 2015* Sabrina is a tired and sore today, Does all her task's, She walked about 15 feet again in P.T. and played and put a puzzle together for O.T.
* February 4th 2015 * Sabrina is feeling very tired and sore today, She does all her task's, She laid down flat on her right side and walked about 5 feet for P.T. played a game for O.T. Later in the day Sabrina's oxygenation saturation dropped abruptly while her father was watching the monitor, He notified the nurse who called R.T. then boosted her oxygen setting, R.T. listened to Sabrina's lungs and found that her right lung sounded abnormal, they brought a portable x-ray machine to her room and saw that air was escaping from her lungs into the chest wall cavity (pneumothorax) She was moved to the P.I.C.U. for a chest tube (pigtail) to be put in, This was so terrifying for Sabrina this little Angel, She had been working so hard and making progress little by little and now this, They put a pigtail in her right chest then hooked it to a chest drainage system once again, She was then taken back to her room in N.T.U.
* February 5th 2015 * Sabrina was taken down to x-ray it showed that her right lung had partially collapsed and had a pneumothorax with septations, They made a decision to move Sabrina back to the P.I.C.U. It was heartbreaking for Sabrina and family. (Continue to next page)
