* February 8th 2015 * Sabrina gets to go back to the NTU today, She is back to her base settings on her vent and doing a bit better, The P.I.C.U. Team of doctors tells the top administrators she is stable enough to go back and that they need the P.I.C.U. rooms for more critical patients, The NTU gave Sabrina her same room back which made her happy.
* February 9th 2015 * Sabrina is still very sore but the PCA is helping her, P.T. came to get her and while she wasn't really feeling up to doing much of anything she got the courage to get out of bed and sit on a bench, She also stood up while playing a game with the therapist, The chest tube that was causing her the most pain was able to come out today and although she was terrified of them pulling it out because of the pain she was very brave and afterwords happy it was gone.
* February 10th 2015 * Sabrina went down for x-rays this morning and did her P.T. and O.T. She later got to try some yogurt for speech therapy and seemed to enjoy tasting something with flavor, She also did something amazing today, Her father was over on the couch and her mother was sitting in a chair right beside her and they both heard Sabrina say something lightly through the cuff of her trach, Sabrina actually talked for the first time, It was so exciting,
* February 11th 2015 * Sabrina gets her trach changed, The San Diego zoo is visiting the Hospital today and although Sabrina cant go up to the forever young zone and see the animals, Her brother brings her down a gift bag filled with cool things from the zoo, Her favorite being a little stuffed tiger she named Aurora, She did P.T. and her brother for the first time got to see her walk and played a game in O.T. with her, Sabrina also did some more talking today.
* February 12th 2015 * Sabrina does all of her task's today in P.T. she walks about 20 feet, Then starts putting together a 200 piece puzzle with her parent's the nurse and therapist for O.T. Then went for a wheel chair ride to the sky bridge briefly. R.T. boss takes Sabrina cuff down for her to talk, Sabrina and her dear friend from music therapy start writing her first song.
* February 13th 2015 * Sabrina does all of her task's, She gets to try thickened Capri sun fruit drink in speech therapy and though she didn't like the texture much she did like the flavor, She walked in P.T. and worked on her puzzle some more in O.T.
* February 14th 2015 * Valentines Day- Sabrina got 4 big heart balloons and cards from her family, Her nurse made a very cool string of hearts to hang and a nice card for her, She finished her puzzle with help from mom,nurse and therapist, Dad finds a couple pieces to put in, She also get's to go down to the lobby of the hospital and visit with her friends from the young women's group, Her mother does her hair then after the nurses shift change,Her parents,R.T. and the nurses wheel her down to the lobby to see her friends for the first time in month's, It was a very emotional event, Sabrina had her cuff on her trach down and it was the first time she was able to speak in full sentences, She was able to explain things to her friends and answer questions, She got all there email addresses so they could stay in touch, It simply was an amazing evening,
* February 15th 2015 * Sabrina relaxes and rest today watching TV, checking emails on her Ipad that her friends are sending her,
* February 16th 2015 * Sabrina does her task's, Works more on her song with music therapy, She walks 25-30 feet today and walks up and down 4 stairs holding the railing by herself, This is incredible to witness from what has gone on with her, Sabrina's will,strength and determination is really something, She plays the game of Clue with P.T. and O.T. and mom, Dad watches and learns from the master, Sabrina was so good at this game and had a very unique style of play.
* February 17th 2015 * Sabrina has a swallow study under video again, She does much better than before, Although she cannot have water consistency liquid yet she did not aspirate any of the liquid consistencies tested today, to be safe she will have to wait a while longer to drink water.
* February 18th-22nd 2015 * Sabrina is working hard on her therapies and doing all she can to get better, Her right lung has begun to leak again, She is also going to need long term formula feeds through a tube so she is needing a G- tube placement and losing the tube through her nose, she will require another big surgery.
* February 23rd 2015 * Sabrina is Taken to the OR, She is very frightened about the surgery and so very nervous, Yet she displays such courage and strength knowing what is and needs to be done today, Her parents remained by her side trying to comfort her until she was given her anesthesia and was asleep, This was a long surgery with multiple procedure's being done, The first was a right loculated pneumothorax with persistent bronchopleural fistula, They removed her chest tube and upon performing this procedure 2 areas with blebs were identified on her right lung, These blebs were cut out, Several adhesions were taken down until her lung was completely mobilized, at which point a mechanical Pleurodesis was obtained by peeling off the pleura and the apex and laterally down to her diaphragm, They then placed two chest tubes as well as some doxycycline and fluid into her right side chest, The chest tubes were clamped and remained in her chest wall, They then moved to her Gastrostomy tube, A 14-french x 1.7 cm tube was placed on her left side, through her skin then through her muscle and then directly into her stomach, It was then held in place by sutures,Dressing and tape, Then they performed an Esophagogastroduodenoscopy with biopsies, ileoscopy with biopsies and a Colonoscopy with biopsies, They scoped all of her small and large intestines and took biopsies along the way, Sabrina was in a lot of pain when she awoke in the recovery room and her parents were there for her when she opened her eyes, They made sure Sabrina was given adequate pain medicine with a good pain control plan then took Sabrina back to her room to rest and recover.
* February 24th-28th 2015 * Sabrina is very sore following surgery but she is willing and determined to continue with her speech, physical and occupational therapies,The next couple of days were worrisome because of post operative possible leaks showing in her x-rays and leaks in her chest tube drains, Those fears would finally come to an end on the 28th with a good x-ray and surgery is scheduled to remove the chest tubes and her broviac (central venous line),
* March 1st 2015 * Sabrina was brought again to the OR to have her chest tubes and Broviac removed, Her parents stayed until anesthesia was given and she was asleep, They removed the sutures from her chest tubes, Each one was pulled out individually, they then put sutures in to close her skin, Then put steri-strips followed by sterile dressing to both incisions, They then opened the broviac catheter site and dissected down to the cuff, Freed the cuff and withdrew the catheter, Pressure was held on the subclavain vein insertion site while her skin was sutured closed, The incision site was cleaned and dried and Dermabond was applied as a Sterile dressing, Surgery went well and Sabrina was sore but so happy to have both chest tubes gone as well as the Broviac (central line) that had been there from day 1 in the Hospital.
* March 2nd 2015 * Sabrina is doing better today her pain is under control, She is breathing room air without oxygen while laying in bed and requiring very low settings while moving around, She got to go to Sophie's place (Music room) for the first time and Jam on all kinds of instruments with her music therapy best friends, Also the team of surgeon's staff and Doctors begin talking to her parents about finally going home due to the fact her parents have completed all training for her cares, Home hospice nurses and equipment have been set up and therapy can be done at home, It was a lot to take in but such a relief that Sabrina was finally doing well enough to go home.
* March 3rd 2015 * Sabrina rides a special three wheel bike today in P.T. with her ventilator and oxygen tank in a basket underneath the seat, She rode all the way across the sky bridge and back it was such a treat to see her do this, She also got to go to Sophie's place (music room) and record her first song with Shaundra and Korinne playing the xylophone which was amazing.
* March 4th 2015 * Sabrina is having a good day, There is a lot of pictures being taken with her favorite Nurses, Physical therapist, Occupational therapist, Respiratory therapist and staff. Equipment is being checked and double checked to make sure everything is accounted for to take home, Things are getting packed up.
* March 5th 2015 * Sabrina gets to go home today ! While her father loaded up two SUV's and a small trailer, Sabrina her mother and her brother went up to the forever young zone for a going away party thrown for Sabrina and her brother, It was a very good time for Sabrina as she was never able to go up there while staying in the Hospital but everyone there knew of her and loved her, Her brother was always up there and had made good friends with them all, After the her father loaded up the vehicles they headed for the house, When they arrived at their house Sabrina was greeted by several of her friends from town with banners strung across the house that read (WELCOME HOME SABRINA,WE LOVE YOU), There was an arch with black and blue balloons tied to it over the side walk to the doorway, There were blue and black ribbons tied all over the trees and such, It was a great much deserved welcome home for Sabrina, Later that night the family had their long awaited Christmas, Sabrina and her families gifts still wrapped and under the Christmas tree. ( 75 DAYS )
* February 9th 2015 * Sabrina is still very sore but the PCA is helping her, P.T. came to get her and while she wasn't really feeling up to doing much of anything she got the courage to get out of bed and sit on a bench, She also stood up while playing a game with the therapist, The chest tube that was causing her the most pain was able to come out today and although she was terrified of them pulling it out because of the pain she was very brave and afterwords happy it was gone.
* February 10th 2015 * Sabrina went down for x-rays this morning and did her P.T. and O.T. She later got to try some yogurt for speech therapy and seemed to enjoy tasting something with flavor, She also did something amazing today, Her father was over on the couch and her mother was sitting in a chair right beside her and they both heard Sabrina say something lightly through the cuff of her trach, Sabrina actually talked for the first time, It was so exciting,
* February 11th 2015 * Sabrina gets her trach changed, The San Diego zoo is visiting the Hospital today and although Sabrina cant go up to the forever young zone and see the animals, Her brother brings her down a gift bag filled with cool things from the zoo, Her favorite being a little stuffed tiger she named Aurora, She did P.T. and her brother for the first time got to see her walk and played a game in O.T. with her, Sabrina also did some more talking today.
* February 12th 2015 * Sabrina does all of her task's today in P.T. she walks about 20 feet, Then starts putting together a 200 piece puzzle with her parent's the nurse and therapist for O.T. Then went for a wheel chair ride to the sky bridge briefly. R.T. boss takes Sabrina cuff down for her to talk, Sabrina and her dear friend from music therapy start writing her first song.
* February 13th 2015 * Sabrina does all of her task's, She gets to try thickened Capri sun fruit drink in speech therapy and though she didn't like the texture much she did like the flavor, She walked in P.T. and worked on her puzzle some more in O.T.
* February 14th 2015 * Valentines Day- Sabrina got 4 big heart balloons and cards from her family, Her nurse made a very cool string of hearts to hang and a nice card for her, She finished her puzzle with help from mom,nurse and therapist, Dad finds a couple pieces to put in, She also get's to go down to the lobby of the hospital and visit with her friends from the young women's group, Her mother does her hair then after the nurses shift change,Her parents,R.T. and the nurses wheel her down to the lobby to see her friends for the first time in month's, It was a very emotional event, Sabrina had her cuff on her trach down and it was the first time she was able to speak in full sentences, She was able to explain things to her friends and answer questions, She got all there email addresses so they could stay in touch, It simply was an amazing evening,
* February 15th 2015 * Sabrina relaxes and rest today watching TV, checking emails on her Ipad that her friends are sending her,
* February 16th 2015 * Sabrina does her task's, Works more on her song with music therapy, She walks 25-30 feet today and walks up and down 4 stairs holding the railing by herself, This is incredible to witness from what has gone on with her, Sabrina's will,strength and determination is really something, She plays the game of Clue with P.T. and O.T. and mom, Dad watches and learns from the master, Sabrina was so good at this game and had a very unique style of play.
* February 17th 2015 * Sabrina has a swallow study under video again, She does much better than before, Although she cannot have water consistency liquid yet she did not aspirate any of the liquid consistencies tested today, to be safe she will have to wait a while longer to drink water.
* February 18th-22nd 2015 * Sabrina is working hard on her therapies and doing all she can to get better, Her right lung has begun to leak again, She is also going to need long term formula feeds through a tube so she is needing a G- tube placement and losing the tube through her nose, she will require another big surgery.
* February 23rd 2015 * Sabrina is Taken to the OR, She is very frightened about the surgery and so very nervous, Yet she displays such courage and strength knowing what is and needs to be done today, Her parents remained by her side trying to comfort her until she was given her anesthesia and was asleep, This was a long surgery with multiple procedure's being done, The first was a right loculated pneumothorax with persistent bronchopleural fistula, They removed her chest tube and upon performing this procedure 2 areas with blebs were identified on her right lung, These blebs were cut out, Several adhesions were taken down until her lung was completely mobilized, at which point a mechanical Pleurodesis was obtained by peeling off the pleura and the apex and laterally down to her diaphragm, They then placed two chest tubes as well as some doxycycline and fluid into her right side chest, The chest tubes were clamped and remained in her chest wall, They then moved to her Gastrostomy tube, A 14-french x 1.7 cm tube was placed on her left side, through her skin then through her muscle and then directly into her stomach, It was then held in place by sutures,Dressing and tape, Then they performed an Esophagogastroduodenoscopy with biopsies, ileoscopy with biopsies and a Colonoscopy with biopsies, They scoped all of her small and large intestines and took biopsies along the way, Sabrina was in a lot of pain when she awoke in the recovery room and her parents were there for her when she opened her eyes, They made sure Sabrina was given adequate pain medicine with a good pain control plan then took Sabrina back to her room to rest and recover.
* February 24th-28th 2015 * Sabrina is very sore following surgery but she is willing and determined to continue with her speech, physical and occupational therapies,The next couple of days were worrisome because of post operative possible leaks showing in her x-rays and leaks in her chest tube drains, Those fears would finally come to an end on the 28th with a good x-ray and surgery is scheduled to remove the chest tubes and her broviac (central venous line),
* March 1st 2015 * Sabrina was brought again to the OR to have her chest tubes and Broviac removed, Her parents stayed until anesthesia was given and she was asleep, They removed the sutures from her chest tubes, Each one was pulled out individually, they then put sutures in to close her skin, Then put steri-strips followed by sterile dressing to both incisions, They then opened the broviac catheter site and dissected down to the cuff, Freed the cuff and withdrew the catheter, Pressure was held on the subclavain vein insertion site while her skin was sutured closed, The incision site was cleaned and dried and Dermabond was applied as a Sterile dressing, Surgery went well and Sabrina was sore but so happy to have both chest tubes gone as well as the Broviac (central line) that had been there from day 1 in the Hospital.
* March 2nd 2015 * Sabrina is doing better today her pain is under control, She is breathing room air without oxygen while laying in bed and requiring very low settings while moving around, She got to go to Sophie's place (Music room) for the first time and Jam on all kinds of instruments with her music therapy best friends, Also the team of surgeon's staff and Doctors begin talking to her parents about finally going home due to the fact her parents have completed all training for her cares, Home hospice nurses and equipment have been set up and therapy can be done at home, It was a lot to take in but such a relief that Sabrina was finally doing well enough to go home.
* March 3rd 2015 * Sabrina rides a special three wheel bike today in P.T. with her ventilator and oxygen tank in a basket underneath the seat, She rode all the way across the sky bridge and back it was such a treat to see her do this, She also got to go to Sophie's place (music room) and record her first song with Shaundra and Korinne playing the xylophone which was amazing.
* March 4th 2015 * Sabrina is having a good day, There is a lot of pictures being taken with her favorite Nurses, Physical therapist, Occupational therapist, Respiratory therapist and staff. Equipment is being checked and double checked to make sure everything is accounted for to take home, Things are getting packed up.
* March 5th 2015 * Sabrina gets to go home today ! While her father loaded up two SUV's and a small trailer, Sabrina her mother and her brother went up to the forever young zone for a going away party thrown for Sabrina and her brother, It was a very good time for Sabrina as she was never able to go up there while staying in the Hospital but everyone there knew of her and loved her, Her brother was always up there and had made good friends with them all, After the her father loaded up the vehicles they headed for the house, When they arrived at their house Sabrina was greeted by several of her friends from town with banners strung across the house that read (WELCOME HOME SABRINA,WE LOVE YOU), There was an arch with black and blue balloons tied to it over the side walk to the doorway, There were blue and black ribbons tied all over the trees and such, It was a great much deserved welcome home for Sabrina, Later that night the family had their long awaited Christmas, Sabrina and her families gifts still wrapped and under the Christmas tree. ( 75 DAYS )
