Sabrina Lee Lion Heart
  • Sabrina Lee
  • Her Story
    • December 19th 2014
    • P.I.C.U. December 20th through the 28th
    • P.I.C.U. December 29th 2014 through Jan 9th 2015
    • P.I.C.U. January 10th-23rd
    • Neuroscience Trauma Unit ( NTU ) January 23rd-February 5th
    • P.I.C.U. February 5th-8th 2015
    • Neuroscience Trauma Unit ( NTU ) February 8th-March 5th
  • Photo's
    • P.I.C.U.
    • Neuroscience Trauma Unit
    • Sophie's place
    • Sabrina at Home
  • Update's on Sabrina
  • 75 days
  • Skillet Concert
  • Crohns disease ?
    • What causes it ?
    • What are the symptoms ?
    • Is there a cure ?
    • How is it treated ?
    • Natural treatments for Crohns
    • Diagnosis
    • Crohn's Disease in Children and Teens
  • Special Thanks
  • Operations list (summary)
  • ECMO slide presentation
  • To you Lord
  • Sophie Simi's "little" Saint
Living with an inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, is a challenge, People with these serious conditions can lose weight during a flare up and gain it all back and then some if they need to take corticosteroids to get symptoms under control and it can be hard to find food that's OK to eat because the conditions differ for everyone.

•"You don't look sick " That's one of the hardest things about having crohn's is people can look OK on the outside but People don't realize that it may have taken that person's last ounce of effort to get showered,bathed dressed, groomed, and out the door.

•"I know what you're going through" When people with IBD tell someone about their condition, they often get an earful about that person's digestive problems,
But it's probably better to keep the details of your upset stomach, diarrhea, or irritable bowel syndrome (an unrelated condition) to yourself, Don't say you understand what they're going through, because unless you have crohn's or colitis you don't know what they're going through,

•"Come on, try a bite!"  By the same token, many people with Crohn's disease are by necessity very familiar with what foods they should avoid.

•"You must have a lot of stress in your life"  Many people mistakenly believe stress causes inflammatory bowel diseases, There's absolutely no evidence that stress or tension cause Crohn's or colitis, although it can make symptoms worse for people who have the diseases.

•"Can you wait until the next exit?" Assume the answer is NO!
If you're in the car with a person with ulcerative colitis or Crohn's disease and they tell you they need to go, listen to them!

•"Is it OK for you to eat that?"  There's no one-size-fits-all diet for people with crohn's disease Fruits and vegetables may be great, but some people do just fine with spicy foods different foods affect different people

•"You're so lucky  you can eat anything" 
Well, not really, Weight loss is often due to flare-ups that cause severe abdominal pain and bloody diarrhea that can mean spending most of the time in the bathroom, And during a flare-up a person may need to choose food very carefully so they don't make symptoms worse.


•"You've really put on weight!"  Prednisone, one of the most effective short-term medicines for quickly quelling a severe flare-up has several side effects including weight gain, Another side effect is "moon face," in which the cheeks get rounded making for a chipmunk like look that can give the impression that a person is heavy even when his or her body is rail thin.

•"Why are you so tired?"  People need to understand that crohn's is a serious disease, It's not because you're lazy or slacking it's because they really are sick
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